Tourette’s Syndrome

It has been a tough week. We suspect Daniel has Tourette’s syndrome. He’s always had a tic – involuntary movement – of some sort, and over time, it has changed. But the tic has never really been a problem until this week when it became much more vocal and almost constant. The vocal aspect consists of seal-like noises and the physical aspect is mostly arm-flapping, sometimes head-thrusting.

His teacher is finding this hard work and his classmates moderately stressful. One of the little girls in his class told the teacher Daniel was giving her a headache. I understand how she feels. The noise, especially, gets very irritating after a period of time. But he really can’t help it and he does try to stop so it must be causing him a certain amount of grief as well. I kept him home from school on Friday to give them all a break but that can’t happen regularly.

I took him to our GP and she said there’s nothing she can do: not even provide any sort of diagnosis. He’s already on the waiting list to see a specialist and has been for at least a couple of months. A phone call later that day revealed his appointment will be the end of next month. Although Tourette’s syndrome is an unpleasant illness, I want this to be the diagnosis because it eliminates some of the other more serious neurological problems that can cause physical tremors. Cognitively, he’s doing very well, so that is reassuring.

They don’t give drugs to 5-year-old sufferers of Tourette’s and I wouldn’t want him to take any of the available drugs as they have quite serious side-effects. Ben has been wondering whether they provide drugs for the parents. I think they call it whiskey.

4 Replies to “Tourette’s Syndrome”

  1. That does sound stressful Rachel. A lot of Autistic children display similar types of behaviour to deal with their complex sensory issues. I imagine you've thought of that already. Hope you get some advice soon.Love,Nicole

  2. Yes, it could just be part of the autism. Things have improved this week which is good. Thanks for your comment, I do appreciate the feedback.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s